Blessed beyond measure
After writing to you all last night I realized something. I am truly blessed beyond measure. Abilene is NOT experiencing a life-threatening event. We are not having to stay at this hospital because she will be dealing with some catastrophic problem. Yes, her issue is serious but nothing like the little boy who is missing his colon and will never live a full life or the other little boy I saw recovering from major brain surgery. These are just 2 of the many kids here. I even feel guilty that we are taking up a room here when there are so many other much more severe problems. I am exceedingly thankful that Abilene is “fine” by comparison. We just need to get to the bottom of this breathing issue so she can live a full and vibrant life without restrictions. God formed her and knows what she needs and we pray for the wisdom and courage to get her the care she needs.
I love my family so incredibly much. I despise being away from any of them…right now I am actually all alone (haven’t been alone in about 4 years!). Little Miss Abilene is having her sleep study done. I will get a picture of what that looks like…it was so hard having to help get all the leads put on her and them wrapping her up like a mummy. Gotta go…Beans woke up and she is doing a SLEEP study!