Sep 19 2013

Ahoy mateys!

Anna
Ahoy mateys!

I couldn’t let today pass without acknowledging National Talk Like A Pirate Day!!! We enjoyed it immensely especially when at The Children’s Place and we spoke like pirates to everyone! We called people “scurvy swabs” which I am sure wasn’t the nicest thing to say but well, we were pirates!

Well, I am off to me bed and I plan to check in on me sleeping scurvy swabs to be sure they be sleeping. I will hold in the urge to yell “Arrrr” as I would like some shut eye as well. Here is a look at me swabs!!! I didn’t make them walk the plank today either…arrr…I am a far too lenient pirate mama!

Too much flash...

Too much flash…

20130704_091839

Not enough flash/light….arrr


Sep 14 2013

Feeling much better

Anna
Feeling much better

Thanks for all of the prayers. We are feeling much better and looks like the boys and the mister have been spared. Yay!

Hope to get back on the blogging bandwagon this coming week!


Sep 10 2013

Prayers please!

Anna
Prayers please!

I haven’t forgotten about you my bloggy friends…Abilene and I have come down with an illness (hers is worse) and it makes for a not so fun time right now. I am just trying to keep going as I don’t feel the greatest.

So prayers for quick recovery for both myself and little Abilene are most appreciated!


Jul 18 2013

13 months…and a prayer

Anna

Little Miss Abilene is 13 months old today! She is growing like crazy and just an absolute joy to have in our lives. She is so happy and content 99% of the time. She only ever really gets mad when she is hungry or we leave her at the church nursery.

We had her followup appointment with Cardiology on Tuesday. It was supposed to be simple. We go in, have an echo done, seen the Cardiologist and be sent on our way. I was completely unprepared for what actually happened. That is where YOU come in. We are praying for a miracle right now.

Abilene still has a moderate-sized hole in her atrium (upper chamber of the heart, also known as an ASD). This is causing shunting (blood flow over the pulmonary valve in excess to what should be there) and it has not yet caused dilatation of the atrium but it is coming. We have been told to prepare for surgery. She is going to have to have this hole repaired since it did not close on its own during her first year. We have 2 options – heart catheterization which will place a device in her heart to seal the hole or open heart surgery. This is not happening tomorrow or even in the next few months. We will be monitoring her for the next year once again and see how she does. If this winter does not go well (as far as frequent respiratory illnesses) then we will be repairing this defect sooner rather than later. Most likely we will wait until she is 2 but it all depends on her and if things start to change. Since she is going to be entering a HUGE development change (walking, running, massive mobility) issues will start to become apparent. She may tire easily, need to rest, want to take more naps, not meet mobility milestones, etc…

When the news was shared with me (Aaron was home with the boys “thank you, honey!”) I was actually stunned. I had not expected to be told that my precious baby girl would need HEART SURGERY. I came away in a daze. I just looked at her and held onto my precious baby and said a prayer. I am now…correction WE are now asking everyone who reads this to please be in prayer for little Abilene. We are asking the Lord for a miracle. We are asking that He heal her heart. We really don’t want to go through heart surgery with Abilene. She has been through enough. We know that whatever the outcome, God is in control. He has known from the beginning and we will trust in Him. But still…I can ask, right?

Anyway, you all have been really patient with me…here are some pictures!

Here I am celebrating with my bubs at his 3rd birthday in May!

She has a nickname “Queen Sugie” – She was able to sit on the throne for her birthday!

CAKE!

Look at my ponytail…look fast too because I will rip it out in about 5 seconds!


Feb 15 2013

Happy Valentine’s Day

Anna
Happy Valentine's Day


Jan 25 2013

RSV

Anna
RSV

Please pray for us. All 3 kiddos are sick. Monday the diagnosis came back positive for RSV. It is a nasty virus that you can get over and over again. It causes respiratory issues; wheezing, coughing, labored breathing, retractions, and in some cases, tachypnea. Well you all know about Abilene’s past. Please pray that she fights this off without a visit to Riley. So far she has responded well to breathing treatments here at home. But at any moment that could change. I am also sick with this virus and I would appreciate prayers for strength to tend to my family.

THANK YOU!!!


Jan 19 2013

7 months!

Anna
7 months!

Yikes! Where does the time go? Abilene is 7 months today! She did have a visit to the pediatrician this morning for a vaccine but I asked the nurse to check her weight and they are always so kind to oblige. She weighed in around 19 pounds! Healthy baby girl! She is VERY long and wears 12 month clothing. She is a true joy to have in our lives. She is the most relaxed, laid back and easy going kiddo. She just rolls with the punches and only gets mad when she is hungry and/or super tired. She does have her particulars: like NOT taking a bottle or formula for that matter. She has forced mama to jump through NUMEROUS hoops to keep her supply but I have been off meds for just under a month now without any drop in supply levels! Yippee! Especially since the medication I was taking made me gain about 20 pounds. Yuck. Anyway, when she sleeps she never liked to lay down. So she slept in a reclined position (thank you nap nanny and rock n play). Whenever she feels kinda yucky, she wants back in that position. Once she is up, she is out!

Little Miss Abilene has now settled into a pretty good routine with sleep. She wakes around 9 am, goes down for her morning nap between 10:30 and 11 am, wakes again around noon-ish or so and hangs out until about 3:30p and crashes again anywhere from 45 minutes to 2 hours. She then is ready for night time sleep around 7 to 7:30 pm. Pretty regular schedule.

She absolutely LOVES to eat. Nursing is okay but FOOD (fruit to be precise) is her passion! She eats an entire packet (around 4 oz) of food 3 times a day! Plus her cereal and snacks! This little lady just gets so much enjoyment from her feeding times.

Abilene loves bath time. I did not have experience with a baby with hair and she has a ton of it. So this was a bit new to me. We have to actually dry her hair every night before bed! She loves it:) It is so cute to watch her watching herself in the mirror. She also loves her excersaucer and jumperoo. She has very strong legs and uses them every chance she gets.

Tummy time was not a fave of this gal’s. So we didn’t do much of it. She has really had NO interest in rolling. But she will go from tummy to back when she gets tired and will get on her side to get at toys.

Teething. Oh the joys (pain) of teething. We are pretty sure she has been experiencing some teething pain. Poor baby. It has been kinda rough but thankfully it comes and goes.

Abilene loves to chew/taste/manipulate/swing/bang/bat/grab/hold onto/smash just about anything within reach. It is so sweet to watch her interact with her brothers. She has the 2 best big brothers in the whole wide world (of course I am not biased or anything:)

Sitting: Ah yes, the “sitting” milestone. She does quite well in the highchair and in the bumbo but no, she is not sitting on her own. Not really her thing right now. She is quite content being waited on hand and foot.

Oh, I almost forgot, she is SUPER DUPER ticklish! I love it, daddy loves it, the boys love it and we exploit it frequently! And now without further ado, here she is!

Loving eating all the toys!

Ooh, squishy turtle, he is super tasty!

Hmmm, what part should I taste next?

Thanks Mom! New toys to munch on!

She got to spend the evening with her Great Grandma Brown and celebrate her birthday. (And yes, Abilene just gets super comfy wherever she is)


Oct 10 2012

A line in the sand

Anna
A line in the sand

We are officially drawing the proverbial “line in the sand.” We will have 1 final procedure for Abilene on Friday and should none of these tests prove anything, we are no longer going to pursue this “mystery” illness. Abilene is doing great and actually showing improvement! We are so blessed to have such a sweet and happy little girl. She is in no stress and we see no reason to continue to subject her or us to any more tests. We love her so much and we already feel robbed of some of her infancy that we do not wish to continue. It has been one crazy ride but we are officially done. We are leaving this (whatever it is) in God’s hands. He is the great Healer – what more could we do?

Abilene’s heart has been cleared. It is not the cause and/or contributing to her symptoms even though the Cardiologist would like to followup on her ASD when she is a year old. Fine.

Her CT scan showed collapse of her posterior lungs but it is far improved from her original CT scan. She may be outgrowing this? The pulmonologist is just as puzzled as we are. She is glad that Abilene is doing better but curious as to why her lungs look the way they do. So, we agreed to have her airway more closely examined via a scope on Friday. She will be sedated once again and submitted to this exam in the OR at Riley. Should this final test give us an actual diagnosis, then we will move forward with that. Otherwise, she is just a happy, sweet little girl who is growing and beating all the odds – so we will leave this alone.

Prayers for her continued healing would be greatly appreciated. It has been a trying time for all of us. I believe God has been leading us to this point for a reason…time to let go and give it to Him completely. Even in my daily devotional last night (just minutes after Aaron and I had this discussion) it talked about “doing the best you can but giving your kids to God.” It doesn’t get much clearer than that! I heard God’s voice and now I am trying to obey.

Sorry for my lack of posts…life is…well, crazy to put it lightly. I have many things I wish to put on here for you all to read and understand where we have been over the past couple months. It has been an interesting road but I am tired and ready to SLOW DOWN.

– Be still and know that I am God. ~Psalm 46:10


Sep 23 2012

Just not quite right

Anna
Just not quite right

Do you ever get the feeling that something just isn’t quite right? You know, that nagging, unable to put to words kind of feeling? Well Aaron and I have both been experiencing this feeling when it comes to Abilene’s condition and treatment. We have been pushed down this road of lung issues. We have been told it is DEFINITELY something in the lung tissue (since all of the other obvious things were negative). We have been told lung biopsy is the ONLY option left.

However…

Aaron and I just cannot consent to a lung biopsy. We have been having such a difficult and tormented time dealing with this. It isn’t so much that we don’t want her to have the procedure (which we don’t) but more or less that we don’t feel that is the right course of action. We aren’t doctors but something is telling us NOT to do it. That “something” I firmly believe is God speaking to us both. We have such a strong sense of wrong when it comes to signing the paperwork and even at her last appointment, she was BETTER! God healed her long enough for the doctor to see it and STOP proceeding with the lung biopsy.

We did ask for another echocardiogram to be done as we saw a “hole” in her heart on the last one and we want to see if that is healing. We were told that ASDs are very common and typically close on their own. Well, the test was done and I was able to read the report at her CT scan. Turns out her ASD is worse than originally seen and she is now showing signs of shunting (left to right) which is when the blood “leaks” back the other way. This isn’t necessarily life-threatening but it is cause for concern. After coming away from the CT scan (which she did great!), I decided to do more research on ASDs. Turns out that in some cases, infants do not tolerate these ASDs well especially when shunting is present and will show signs of TACHYPNEA and RETRACTIONS! Gee, that is EXACTLY what Abilene is suffering from! I think I may be on to something here. Now, in defense of the pulmonologist, many of the babies who suffer from untolerated ASDs typically do not thrive or meet milestones. This is NOT the case with Abilene. She is growing and advancing as she should (except for tummy time strengthening but that’s not all her fault). We will be seeing the pulomonologist on Thursday and we will discuss the results of her tests and determine a course of action. We are requesting consultation with Cardiology before we go any further down the road of lung biopsy.

In summary, please pray for wisdom for us and the doctors and that we will get to the bottom of this quickly so she can be treated (if needed) and live a full and unrestricted life! We love her so much and we just want her to be whole:)

 


Sep 19 2012

3 months

Anna
3 months

I know this blog has been tumbleweeds lately but we have been crazy (to put it lightly). I made a promise though (to myself) that I would get her 3 month post up today!

So, little Miss Abilene is 3 months old today! She is so sweet and by far the best baby I have had (stage for stage). We are in a great groove although I think she sleeps a bit more than I am comfortable with but who am I to complain? Her smile will melt your heart and she is just a jabberbox! She loves to coo at you and “talk” with you. She also has a favorite toy, Mr. Froggy. Man, she goes NUTS over him! Abilene is definitely a flirt. I have to keep my eye on her. She adores her daddy and brothers. She likes me but she is definitely different with them. I am just the milk maiden. The boys and daddy are barrels of fun! We are working on tummy time and that has been a bit tough since she absolutely HATES it plus she sometimes struggles for air and that makes me a bit apprehensive. Other than that we are totally on par for her milestones! At last weigh in and measurement which was just last Thursday, she weighed in at 13 pounds 9.6 ounces. She measured 23 1/2 inches. Her head was a ginormous 17 inches! Whew! This little lady is still tiny even though she is a big girl. She has been in 3-6 month clothing for quite some time now and even stretches into some 6-9 month clothing:) She is our joy and it is amazing to be her mommy! Here she is!

All 3 of my sweet babies.

Abilene’s first jeep ride

Don’t mess with the do!

All ready for bed. Goodnight!